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Fighting for life against Wilson's Disease....

WILSON'S DISEASE

Wilson's Diease is a very rare, diease, occured due to an  autosomal recessive genetic disorder in which copper accumulates in tissues; this manifests as neurological or psychiatric symptoms and liver disease. It is treated withmedication that reduces copper absorption or removes the excess copper from the body, but occasionally a liver transplant is required.






well here is my story 


My papa had an abnormal birth. He was born after seven months of pregnancy of my grandma. My mom had a normal birth. There is no one in the family of my both papa and mama who has suffered from Wilson’s disease. I don’t know how do I get it. There were two elder brother and sister of mine who died when they were at the age of 7 and 9 years old respectively. I can’t ask about them to my parents because I know now the pathetic condition of my parents then told to me by my aunt then when they lose them. Both of them died without the disease was diagnosed. They both died at an interval of 1 month. When they were ill I was taken away from home. There was my papa’s aunt with whom I used to stay in those days so I didn’t remember anything about my bro and sis. I don’t even remember how they look like still I wonder if I could at least see them and remember them.
Talking about myself, when I was seven years old. I remember I get symptoms of jaundice initially. My parents especially my papa was so worried and my mama so was tensed. They have already lost their two children earlier when they are of my age. I was the only child remained. They loved me so much. Not only my parents since I live in village everyone of the village knew my parents and me. All of them became them became quite tensed. My papa and mama thought that I was caught by jaundice so they took me the vaidhaya ( A doc who used natural medicines to cure diseases). I remember one thing every time my papa took me to him he used to ask me son which taxi you want to travel by I said in loud voice a red one papa. He always took me to vaidhaya in a red taxi only. I used to have a medicine that was like dust of wood. It was too bitter I can still remember that taste. I used to have lots of sugarcane juice in those days. My condition grew serious day by day. I can remember only one thing before I lost conscious. One day I had a sugarcane juice and was sleeping on the bed at that time I vomited all the juice. That’s what I remember before loosing my conscious. Now I have become completely unconscious. I didn’t know anything about what has happened then. I saw a report where there is mentioned that I have a Wilson’s disease, there was mentioned like this,” it is having jaundice for 40 days... pt had fumitory attack once 2 weeks back it is suspects of Wilson’s disease. Since my condition grew serious my parents has finally taken me to hospital, I was then seen by two Nepali doctors. My papa told me according to them my liver has failed and I can’t live anymore. Just after I was admitted to the hospital for two days my papa and mama left the hope that I would survive. The destiny was waiting for me to live my life. On the third day when I was lying unconscious the angel appeared to grant me my life in the form of Doctor Alex Dalzell, he took my case in his hand. He was from USA. He observed my symptoms. According to my papa my angel knew about the Wilson’s disease. He observed my symptoms. I was admitted to Patan Hospital then I was referred to teaching hospital to be sure that I was suffering from Wilson’s disease. The report came positive. Since then I was prescribed of the penicilliame tablet of 250 mg 3 tablets, 10 mg of pyridoxine and vitamin k. I stayed in hospital for 25 days. In those days I remember I used to read one small bible. My voice used to be louder while reading it. There were pictures of Jesus. I always read that book in those days. I still remember whole story, it was all about how Jesus got rebirth after the people killed him in Kruse. I always wanted that book to be with me so after I returned back home I told my papa that I wanted that book, he tried to get that book but he couldn’t get that book. In the course of my treatment Alex became quite close with our family. He was like a god for our family who saved my life. When I was ill the greatest festival of Hindu was close it was Bada Dashain. Whole of the village haven’t celebrated the Dashain that year 2051 B.S (1994 A.D) all the villagers showed their sympathy to my family since I was ill. I was taken back to home on the laxmi puja day of Tihar. It’s the second greatest festival of Hindu. I know what has happened the day before I was discharged. When my papa and mama left the hope of my survival they returned back to home they hadn’t visited me once in the hospital. They went back to hospital just the day before I was about to discharged. On that day I was very angry with my papa and mama, I told them I won’t go back to the home instead I told them I would go to my mama original home. I was angry since they were not with me in the hospital. They never visited me in hospital they had already given up their hope that I would be alive. The next day I returned to home. I saw the marigold flower which I have planted was blooming. I sat on the bed and all the family members sat around me with a smile in their face. Day by day my health was improved. Everyone in the village congratulated me and my family my only papa and mama. All of the family members, relatives became happy. Since my papa is a quite friendly type he has already became close with my angel Alex. He then became close to his family. Now he called my angle and his family to our house. They came, all the villagers welcomed them. We then became quite close with his family. He has a happy family with a wife and two children one daughter and one son. Life was all well since my angle was with me. He left Nepal and went back to his home land America. I know I was 13 years old when my angle left me and went back to his home land. Initially I was started with 3 tabs of penicilliame slowly and gradually the dose was decreased to two tabs for week. I know I had vitamin k till 9 months. There was so much diffcult to get this medicine after 6 months and I have to anyhow take that medicine for 9 months. My papa was so tensed because he didn’t have any idea to get the medicine. The god was helpful he always managed for the medicine anyhow till 9 months. Now my angle left me and went back to his homeland. Now I started committing big mistake. I started having all those diet which was prohibited to have when I became ill. Since I didn’t have any facilities to get information about my disease. And my angle was out of county, I have changed my school in class 4 and as soon as I changed my school I start having all those things which I was prohibited to have. I was a child of 12 years. My school was far from my home nobody knew about me. I continued having those things for 3 years. At that time I used to have two capsules of penicilliame per week only. When I changed my school I topped the class. As soon as my angle went back to his homeland he has started donating for my medicine. He knew our family economic condition was poor. My papa used to work at one and only international airport of Nepal, “Tribhuvan International airport”. He has already finished his provident fund amount in my treatment. My papa bore all the expenses of my medicine till 5 years. In those days I need to have mineral water which cost Rs 20. The penicialllimine capsules cost Rs 40 per capsules . My papa salary was hardly RS 3000 per month. Anyways he managed for my medicine through his provident fund. My angle knew all these things so he started dontaiting for my medicine just after he went back to his homeland. A year after my angle left Nepal my papa was kicked out of the job since he was temporary and at that time Indian airways was hijacked from international airport of Nepal. Because of which my papa along with most of the people who has temporary job were kicked off from their job. At the time my angle left Nepal he has taken water sample of well, tap and my blood for test to his country. He sent the report of that in hospital. We got good news for water. In the report it was mentioned I can drink boiled water but my blood couldn’t be tested. Time passed on, I was a bright student. Well I topped every class up to class 8. My parents were too proud to have me. I know it was beginning of class 7 my voice start to change initially. My parents thought that it’s the sign of adolescent period. My handwriting used to be just like computer type then. I know it. Its been already two years my angle left me and we stooped going to hospital for check up. There was no problem to me. In the initial time of class 7 my voice started to change, my handwriting start degrading slowly and gradually. I didn’t tell anything to my papa since I used to be afraid of him and my mom doesn’t know anything. She is an illiterate so couldn’t tell her anything. Finally the last term of class 7 was started on the last terminal exam of class 7 I have already ruined my handwriting. I couldn’t speak properly. Still I didn’t told anything to my parents, finally result of class 7 was published I have topped the class but all the teachers commented me about my handwriting. They said I need to improve my handwriting. I came to home I told my parents I topped the class. They became quite happy. I am waiting for my next year in this period once my papa had met my Nepali teacher he told everything to my papa about my handwriting. That night my papa came home he asked me I told him I am feeling quite difficult in writing don’t know why. The next day he took me to hospital. I know she was one of the doctors who said that my liver has failed earlier. She took my case she said my dose medicine was low so I am having all these problems. She had done certain test that day she made s wait in the hospital till 5p.m I know until the report came. The result was positive. I was 16 years old then. She initially given me 3 tabs of penicilliame for a week and called me after a week for a check up. I went again after a week she then added one more tabs of penicilliame, zinc acetate solution and a pyrioxidine. I start having medicine as per she said. My body turned to black initially and slowly and gradually the color of my body has start becoming normal. My voice started becoming clear. My handwriting was same it didn’t improved. I don’t know why? I started writing but my hand didn’t move. I have improved a lot on everything and in my handwriting also but still my handwriting becomes like it used to be worst now also if I try to move my hand as normal people do. If I move slowly also I can write clear up to 1 page only and after that the situation is same. Time passed by finally our SLC came after two years I need to prove myself that I was a bright student and I am a bright student. The school arranged a writer for my examination. I gave the exam I topped my batch and became third topper of my batch. All became happy me too. I wanted to study science but since I was unable to write on own I have to do great compromise then I took management. I had a dream of becoming doctor since my childhood but till I am grown up I wanted to become software engineering. Since I start knowing things I was quite interested in computers they really amused me still today my interest is same. I took management and studied computer science then. I have topped my high school in second rank. Again in my final exams writer need to be arranged. Simply because I can write not as a normal student at a normal speed. I am grown up till now; I knew what are good for me and what are bad for me. Knew my weakest part. My life was hopeful till I graduated high school I had a hope that I can improve my handwriting. Still today I have a hope but I don’t know when that day would come. I am student still and dr. Alex Dalzell is still funding for my medicine but I don’t go to hospital because everytime I go to hospital I have to see a different doctor. The doctor who took my case later on is a children doctor. She looked after me for 1 year only and then she referred me to go to the doctor who sees the young doctor. There is a ward in the hospital where young and old patients are look after. I had gone there many times but each time I go there I didn’t find the doctor who has seen me previously. Each time I go there I have to see a different doctor, need to start to tell all the history of my disease. I simply hated that. So nowadays at the interval of 4 months only I go there to take prescription of my medicine come home and continue the same doze 4 capsules of penicilliame, 25mg of pyrodicmine and 7.5 ml of zinc acetate solution. I don’t have any problem except on my writing and sometimes during talking. It’s the story of mine. I always wanted a page like this where I could take my problem so that people around me suggest me what I need to do. I opened my facebook two years back and started searching about this page since then. I had an access to internet since three years only. Still I am trying to get net connection to my home but what to do my economic condition doesn’t allow me to get it. I normally use my mobile to be updated with facebook and my mobile is gifted by my John Ross three years back. It’s Nokia 3110 c. I want to thank John Ross he has paid all the dues of medicine which was there just after the doze of the medicine was increased and Alex didn’t know about it. Now he knows it and he started sending money to the hospital from where I get medicine. John Ross gifted me a laptop four years back. My laptop started getting a lot of problem this year. Still with all compromise and many things I am living my life with a hope that one day I am going to get rid of every problem. I know I can’t never get rid of my disease and take the medicine lifelong but the problems I have because of the disease is awful still doesn’t matter I have a hope that one day I shall make my birth a successful birth. Its my story of disease not only the mixture of how I got Wilson’s disease but a little emotions of myself, my family and people. I hope you didn’t get bored. No matter what problem I have what struggle I have to do, I consider myself as a lucky person in the world.
my name is ashok pandit
age: 22 

Adsense

Adsense is a one type of adds which is most popular in the world. There are different kinds of adds in the market like or for examples: email marketing, info links, bidvertiser, friend finder, contextchuwa, add fly and link workers etc. This is most popular adds system which is most effective type ads for the internet technology. There are different categories adds are available in the internet system. The adsense is a one type of systematic ads which is used in free ads flow any place in our websites. Adsense is one type of id for example our exam roll no. This id is unique of each any every adsense account not repeated this id no for adsense account. Our all earning fund is deposited in same place like adsense account. This one type of online business which is easy to drive any client or user or customer. It is freeware service in the world. This account is freely keep and do works. Actually this ads type is most effective ads for the websites. It is most popular ads service in the world. Most of the people used adsense account for give ads in the website.

For PR Jobs, Cheetah Forum Jobs, and Forum Posting Jobs

Choose the PR job
1.

If your ranking of the site is in rank then Login to your blog/site and click on new post button and post the article as employer mention the keyword. Do-follow the link and anchor text in your article. Do-follow means hyper link the keyword or anchor text mean you need to make that keyword clickable which will redirect your page to the URL assigned to you.

2. 
  Publish an article and click view post than copy the URL of the article shown page and post it in your proof box.

If your site in not in rank in google then you need to follow the following steps :

1. 
  Copy the words which is in the job title which is after link to"......"

2.
  Then go to Google.com and search that word in Google placing a tag forums after the words.

3. 
  And need to choose appropriate site from google which have forum,show thread,new topic,new post,discussion in the website URL.These words can be found in the site URL with green letter.eg http//;www.minuteworkers.com/forum/

4. 
  To write an article or post you need to choose the section of the site.If there is advertisement section then go to that section if  not then you need to choose Off topic section.Off topic section are ( Off topic, Miscellenious, General chit chat, Random discussion,Loung chat)

5. 
  After going to these section you will see posts posted by the other users.There you can find the button as we find in blogger.ie New Thread,New Post & Start Topic.

6. 
   Click that button and you will redirect to the page where you can post the title and article.Put the tittle and write the article in that page.

7. 
  After writing an article or post we are given to insert the link in our post or article.Copy that link or url and paste it in your article box. You are given anchor text and url in the job instruction. You need to make the anchor text clickable using hyper link button which is like earth and chain shape. If there is no any hyper link button then use the following code :

  First Process

If there is insert link button

a.  Copy the anchor text from Microworkers and paste it on the post where article is written.

b. Copy the URL/Link from the Microworkers.

c.  Highlight the anchor text which is on your post.

d. Click in the insert link button which is shaped of earth or chain.

e.  One form will be appear where you must place the link.

f.  Click on ok button.


 If there is no any hyper link button then use the following code :

a. [URL=“url”]anchor text[/URL]

b. [URL=url]anchor text[/URL]

e.  <a href=“url”>anchor text</a>


8.
    Use these code and check it whether the anchor text is clickable or not by clicking preview post button. If the anchor text is clickable then click on post thread button and post the article.
Copy the post URl and paste it in your proof box.  

To check the PR of the site go to www.prchecker.info and put your site URL and anti bot code than  check it.








Procedure to do Microworkers Cheetah Forum 

  Let me tell you something that if you successfully completed any of the Cheetah Forum Posting Jobs available to you in Microworkers, then you can earn approximately 0.28$ easily. But the true fact is that many newbies over Microworkers don't have an ideas of doing Cheetah Forum Jobs. Thus considering mostly for newbies, I personally have dedicated my effort to list the suitable step by step procedure below to handle Microworkers Forum Jobs:


  • Log In to Microworkers and open any of the Forum Post Jobs available in your Job Section. Now you will see a link like "http://cheetuh.com/b/prQwf8E-7deb4b6e". Again open this link available while doing Forum Job in your browser's New Tab.
  • Now you are able to view Keyword or Anchor Text, a link and a box to submit Forum Post link.
  • Open any of the best forum regarding to the Keyword in anchor text and post an article of about 30 words which describes the link contained inside "http://cheetuh.com/b/prQwf8E-7deb4b6e". While writing a post provide the link in the middle of the paragraph with that anchor text provided to you. I strongly recommend you not to put the link either at the beginning of the paragraph neither the end of the paragraph.
  •  Now "Submit the Post" and Copy the "URL Link to your Forum Post".
  • Again go to the opening browser tab of "http://cheetuh.com/b/prQwf8E-7deb4b6e" and submit the link inside the "Forum Post URL" box.
  • Congrats! Now you will receive "7-digit Conformation Code". But bear in mind that if your task is not well performed than you won't get this type of code. Now for proof you have to copy it if you get that code..
  • At last, accept that Job and Paste that "7-digit Conformation Code" inside proof box and Click "I confirm that I have completed this task"!



I hope now you all can complete the Forum Jobs available to you in Microworkers Job panel without facing any sorts of problems. Get ready to grab the opportunity to earn money through Microworkers by performing Forum Jobs. Well now for any suggestions and problems regarding Microworkers Forum Jobs leave comments. Also if you have best forums suggestions rather than above listed, please share it with our community!



Forum Posting:

 How to do the forum jobs :

There are three types of forum.
For this condition : If
Go to a forum (it should be popular, not a forum with no or little users) then follow the following :
1. Go to http://www.forum.jitutechnology.com/forum.php

2. Register to the site for the 1st time.
(For second time you don't need to register to the site.You can log in to the site with the old username and password.)

3. If the site is assigned to you already then you need to go to that site and register and should verify the mail and login to that site.E.g go to http://www......com
For this condition :


4. If they ask to find the forum then you need to search in google placing  forum after the keyword. And need to choose appropriate site from google which have forum, show thread, new topic, new post, discussion in the website URL. These words can be found in the site URL in green letter. E. g http/:www.minuteworkers.com/forum/
5. To write an article or post you need to choose the section of the chosen site. If there is advertisement section then go to that section if  not then you need to choose Off topic section.Off topic section are ( Off topic, Miscellaneous, General chit ,General chat, Random discussion & Lounge chat)

6. After going to these section you will see posts posted by the other users.There you can find the botton as we find in blogger E.g New Thread or New Topic or New Post or  Start Topic or Post new thread,new topic and new post.
7. Click that botton and you will redirect to the page where you can post the title and article. Put the tittle and write the article in that page.
8. After writing an article or post we are given to insert the link in our post or article. Copy that link or URL and paste it in your article box.
9. If there are more steps then follow those steps if not then you can post it by clicking the post thread button or submit post button or send button.
10. After clicking the above button you will redirect to your post which you have posted.


Copy the page URL where your article has been shown and paste it in your proof box.


Yahoo Answer, $0.10 Delicious Bookmark: Microworkers, How to Bookmark on Digg, Google Jobs

For this Yahoo answer job you need Level 2.
How to do the yahoo answer Jobs:


You are asked to search the question in yahoo answer.
If you are given link then browse the site and read the contain of the site.In some case the browse site only contain keyword and website URL.
If you are given given keyword then you need to search that keyword in yahoo answer .
While searching the question you need to use refine search which is at the left hand side of the page.
Choose the appropriate question to answer.If you find the zero answer question choose that if not then other question.
Give answer above 30 words with minimum 3 sentences.
After giving the answer in answer box you need to place the link in source box.
This link can be found in the job instructions.This link is given saying "Include this link in your signature/resource box".
Put this link in that box and submit the answer.
This is the finish of yahoo answer job.





 $0.10 Delicious Bookmark: Microworkers;

My microwoker friends does not this job. It is very easy but I think that you can’t understand. They are all intelligent and best workers. But they have been working in stumbleupon.com as bookmark. Delicious bookmarking is different than stumble upon. Therefore they are trouble in this task. I think that if I can guide right them they will do quickly. Therefore I thank that I can help them for complete this task. Please follow this step:
1: Create an account on Delicious.com.
2: I think you create account with facebook is better than Email.
3: After creating account you must sign-in into your delicious account.
4: Click on the ” Add link”
5: Add the link of cheetoh is providing you URL. Copy and paste into “Add link” than click on the save.
6: Next step is new page will open. Copy the anchor text who is cheetah is providing you. and paste into tag option. Tag option is below top of left side the picture. Example as you paste nfmobileshop.
7: Write description into description text box about website of cheetah providing you ULR. (This is optional. If you do not want to write that you don’t write. It is depend on you)
8: Click on save again. Page will page.
9: When the page will page you can see your recent post on this page.  Click on the tag remember that you give tag with it before this step nfmobileshop.
10:  Now are on the post url. only one recent post will show if you do right.
10:  Copy the URL of this post.
11: Paste into cheetoh .
12: Than click on the post.
13:  Cheetoh will give you a secret code.


14: Now you are able to submit this code as task proof.




 How to Bookmark on Digg :



Digg is another social bookmarking sites. Bookmark your latest post article and share to others and gain more traffic. Digg is like Stumbleupon,  and so forth.

How to Bookmark?
Go to Digg.com
Log-in to your Digg Account (Sign Up if not yet registered).
At your Dashboard Area, you will see a "SUBMIT LINK". Put the URL of the text area.
Choose the Category.
Then, hit the DIGG IT




Google Jobs:


For this job you need to have a google account.
How to perform the GOOGLE Jobs
If you are ask you to +1 then you are given to the site.Browse the site which is given to in new tab and click on +1 BUTTOM.
Then go to your plus.google.com
click on +1's
copy the url for proof
If you are asked to share in your wall then post the link in your wall of plus.google.com.


This is the finish of the google job.

Social Networking Sites Jobs on Microworkes


YouTube Jobs;


this you need to create an account in YouTube.com
If you do have google account then no need to create account.Google account can Login to YouTube account.
In this type of job they will give the link of video of YouTube.
Browse that link in new tab or new window.
Login to your Youtube account.
They ask you to like the the video.
Click like buttim or thumb up  buttom which is below the video in youtube.
If you are ask to Subscribe the video then look above the video there is Subscribe buttom.Click on that buttom.
If you are ask to comment the video then look at the page where other user comment.There is box to comment.Comment always positively. Negative comment will not approve.
If you are ask to Favorites the video then there is ADD + buttom with like buttom below the video.Click Add + buttom and click on favorite.
If you are ask to share the video then click on share buttom and share the link in your site where they ask you to share.
This is the finish of YouTube Jobs.



Twitter Jobs:


For this job you need to have an account.

How to preform the Twitter job :
Some time employer puts the condition that you need some followers for this you need to make followers.
If they ask you to follow the user then they will give you the link of that user whom you need to follow.Browse the link in new page or new tab.
You must be login to the account.
You can see the follow buttom in that browse page under the user profile.
Click that follow buttom.
If they ask you to tweet the page then login to your account and post that link in your wall.
For posting you need to click on tweet buttom as we do in facebook.
If they ask you to retweet then you need to think that retweet means we need to like that post.In facebook we can see like but in twitter for link we need to click the retweet buttom i.e Like in facebook = Retweet in Twitter.
This is the finish of the Twitter jobs.


Facebook Jobs:


For this you need to have an account in facebook.com and you need to login to your account.
This is the site which we use most and we know how to operate to this site.
Basically in this job category we are asked to like the page, share in your wall, suggest to to your friends.
You are given the page link and you can browse the page and can like the page by clicking the like buttom.
You can suggest the friend by clicking the suggest friend link from the left hand side of the page.
You can share in your wall as you post your think in your wall but while posting you need to post the link and comment something positive to the site while sharing.
This is the finish of Facebook job.




Bookmarking

This category include all the social bookmarking site i.e facebook, twitter, digg, buzz, google, stumbleupon, delicious and many mores..
Ok for this types of job we need to know that first thing is we need to save the link in our profile.For this bookmarking job you need to have account to these sites.Not only account but you need some friends and some followers too.
How to perform the bookmarking job :
They will ask you to bookmark the site or page.
Login to your social bookmarking site which they ask you to bookmark.
Copy the page and browse the site in new tab.
You can share that page by clicking the share buttom also or you can post it in your wall also.
After placing check your profile whether the link of the browse site is in your profile or not.
This is the final step of bookmarking job.

CLICK AND SEARCH

Here you are given the instruction.
Some time they ask you to go to www.google.com,www.bing.com or any other site.
You need to go to that site where they ask you to go.
They ask you to search something, they give words or phase or paragraph.
Search that paragraph or word or phase given to you.
They ask you to enter the site, this may be search result or some page.
If they ask you to click some thing banner then click that banner if not they ask you to click the advertisement which is given by the Adsense or other site.
Browse that banner or ads in new tab or new window.
This is the final step.

Sign up

How to do the do the jobs:


You are given the site where you need to sign up.
Browse the site in another New tab.
When the jobs come for sign up always think you need to create an account to that site.
You need to fill the form with the required information.
Basically email address, password, Your name, username, address,country,zip code,postal code,state/province/region and other information.
Always use after sign up you need to verify your mail which you use while registration process.
After verifying your mail always login to the site.
This is steps shows your have complete the sign up.

ROLES OF YOUTH IN MAKING CONSTITUTION

ROLES OF YOUTH IN MAKING CONSTITUTION  


Youth are considered as pillar of nation. Youth can provide great contribution to every sector of nation development. Those countries in which youth have participated in development have developed in a sky rocketing trend. Nation would reach to ultimate level of development when the youth of the nation actively take part in development programs of that nation. Constitution is main law of country. For making the main law of country youth has been providing contribution from the initial phase. Youth are pillar of nation that leads the country towards development, and constitutions makes that way. Constitution confirms basic fundamental rights of country and citizens of the country.
The making of constitution starts from election, for the preparation of election to final amendment of constitution in every step youth are needed, their participation in every step in every phase plays a vital role. Despite the fact, constitution is made by the representative who are selected by election procedure held in country, this procedure is impossible without the participation of youth of country. Youth plays vital roles in advertising the representative.

In this way youth plays vital roles in making the constitutions the main law of country….

David's Story for fighting with Wilson's diesease

was born in January 1950. I had an uneventful childhood, moving from place to place. I lived in a cottage by the River Lee and enjoyed the summers fishing and swimming in the river. Time passed by, and in the year 1986 I had my first attack. At that time I was working for a leading electrical wholesaler. I was on the phone and suddenly couldn’t talk or move, although I knew what was happening around me. I was rushed to hospital where the medical staff diagnosed me with having epilepsy.

All was fine for few weeks. I was on medication and had no further attacks. But then the attacks returned one after another, sometimes up to ten times a day, which left me exhausted and depressed. It obviously wasn’t epilepsy, so I was referred to another specialist who went through extensive tests before diagnosing me with Benign Essential Tremor (now known as Essential Tremor) for which I was treated with a course of beta blockers. The attacks became more frequent and my employers not being sympathetic informed me that I was no longer needed. My condition was worsening day by day. I was without a job.

My GP then referred me to the National Hospital for Nervous Diseases and I underwent far more extensive testing. My eyes were checked with a slit lamp after which everybody became excited, Kayser Fleischer rings had been seen which meant that I probably had Wilson’s disease with excessive copper in my body. I thought to myself, ‘how on earth could copper cause all these problems?’

Finally Wilson’s disease was diagnosed and I wasn’t suffering from either epilepsy or Benign Essential Tremor. I was told that I would need to take medication for Wilson’s disease for the rest of my life and was prescribed penicillamine to chelate copper. It later transpired that the dose was too high for me as I was bruising very easily and if I cut myself it took a long time to heal. After an accident once I attended the A&E department at Hospital and was found to have a seriously low platelet count. I was given a transfusion of platelets before having my medication swapped from penicillamine to trientine (which I stayed on until 2009.)

In late August 1988 my health had improved so much that I applied to be an Administrative Assistant working for His Majesty’s Government in the Home Office. As a civil servant I held various positions before settling in the Immigration and Nationality Department, where I stayed until retirement in March 2010.